The Stargardt’s Summit

Date: Thursday, February 29, 2024
Time: 1:00 – 5:00 pm ET
Location: Zoom

Join us on Thursday, February 29 at 1:00 pm ET for the virtual Stargardt’s Summit to learn about the newest research, explore adaptive living resources, hear impactful patient stories, and connect with others going through a similar journey!

The summit will have three panels:

  • Patient Panel – Kira Baldonado, Vice President of Public Health and Policy at Prevent Blindness, will guide a conversation with panelists Chloé Duplessis, Charlie Collins, and Jack Duffy-Protentis who will share their personal experiences with Stargardt’s.
  • Medical/Research Panel – Ben Shaberman, Vice President of Science Communications at Foundation Fighting Blindness, will guide a conversation with panelists Dr. Jason Comander M.D., Dr. Peter Zhao M.D., and Dr. Abigail Jensen Ph.D on the latest Stargardt’s research and the biological basis of the disease.
  • Accessibility and Adaptive Strategies Panel – Tina Laffer, Director of Outreach and Community Engagement at The Carroll Center for the Blind, will guide a conversation with panelists Sam Seavey and Bob McGillivray to explore the latest tools and strategies to navigate the world with Stargardt’s.

The Stargardt's Summit