Videos

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Mar

Retinopathy of Prematurity (ROP) Family Resources at Hand to Hold

Kelli Kelley highlights Hand to Hold’s comprehensive support services for NICU families, offering one-on-one peer mentoring, virtual support groups, educational materials, and resources accessible through...

Mar

What are Some of the Challenges Parents Face in the NICU?

Tiffany Gladdis, PsyD addresses the emotional challenges NICU parents face, particularly grief and guilt. She emphasized the need for supporting families in releasing guilt and...

Mar

ROP – What Kind of Support do Parents Need When Their Baby is in the NICU?

Tiffany Gladdis, PsyD emphasizes the need for NICU teams to have a dedicated support person who can validate parents’ emotional challenges, empower them to advocate...

Mar

Retinopathy of Prematurity (ROP) – Advice for Parents

Nicole Pratt, MAT, BS and her son, Jordan, emphasize the importance of advocating for your child’s care through asking questions, sharing your personal story, and...

Mar

Retinopathy of Prematurity – Advice to Clinicians, Nurses and Social Workers

Kelli Kelley highlights the importance of early intervention support for NICU graduate parents, emphasizing the role of peer mentors, family support specialists, and mental health...

Mar

Recording a Solar Eclipse with Your Smart Phone with Astrophotographer Jon Carmichael

Mar

Photographing a Solar Eclipse – DSLR Tips with Astrophotographer Jon Carmichael

Mar

Retinopathy of Prematurity (ROP) – What Do you Remember from When Your Child Was First Diagnosed?

Tracy Pella reflects on the overwhelming moment her micro preemie was diagnoses with ROP, highlighting the uncertainty, emotional turmoil, and need for clear guidance while...

Feb

Retinopathy of Prematurity (ROP) – Parents Are Part of the Team!

Olachi, Mezu-Ndubuisi, MD, OD explains the importance of parents being active members of their baby’s NICU care team and advocating for their child while building...

Feb

Retinopathy of Prematurity (ROP) – What is the Impact of Anti-VEGF Treatment?

Dr. Paul Chan explains uncertainties surrounding long-term outcomes of anti-VEGF therapy, and recent studies to support its effectiveness in helping prevent blindness in some ROP...

Feb

The Most Challenging Part of My Child’s Retinopathy of Prematurity (ROP) Diagnosis and What Helped.

Nicole Pratt speaks to the challenges faced as a parent navigating the uncertainty of her child’s potential vision impairment. She emphasizes the importance of early...

Feb

How Parents Can Prepare for the Retinopathy of Prematurity (ROP) Exam, diagnosis, and treatment

Claudia Perez, BSN, RN, COA emphasizes that exam diagnosis and treatment options are interconnected and encourages parents to thoroughly review the provided information and continue...