Prevent Blindness Provides Educational Resources for Patients and Healthcare Professionals for Geographic Atrophy, an Advanced Form of Dry Age-related Macular Degeneration
Prevent Blindness is announcing the second annual Geographic Atrophy (GA) Awareness Week as Dec. 5-11, 2022. GA is an advanced form of dry age-related macular degeneration (AMD) which affects central vision. GA can lead to progressive and permanent vision loss.
According to a new study “The Prevalence of Age-Related Macular Degeneration in the United States In 2019” published in JAMA Ophthalmology, an estimated 19.83 million Americans were living with AMD in 2019. Of those, 18.34 million Americans had early AMD and 1.49 million had late-stage vision-threatening forms of AMD (“late-stage AMD” included choroidal neovascularization and geographic atrophy).
To help educate the public on GA, Prevent Blindness has created a variety of resources in English and Spanish, including a downloadable fact sheet and a series of shareable social media graphics. Prevent Blindness also provides a dedicated webpage. Prevent Blindness developed the content of these resources with funding provided by Apellis Pharmaceuticals, Inc.
A new episode of the Prevent Blindness Focus on Eye Health Expert Series, “Geographic Atrophy and Patient Support,” is now available, featuring Prevent Blindness, Ohio Affiliate Past President and CEO, Sherry Williams, who offers her unique perspective of working to advance vision and eye health services as a professional, as well as sharing her personal story of helping to provide ongoing support to her mother, who has GA.
Prevent Blindness offers an additional episode on GA from the Focus on Eye Health Expert Series, where Jeff Todd, president and CEO of Prevent Blindness, interviews Dr. Janet S. Sunness, medical director of the Richard E. Hoover Low Vision Rehabilitation Services at the Greater Baltimore Medical Center. Dr. Sunness directed a National Institutes of Health-funded natural history study of geographic atrophy. Her research has focused on using visual function measures to better understand retinal disease, particularly AMD and Stargardt disease.
For GA patients and their care partners, Prevent Blindness recently launched its updated online resource Living Well with Low Vision. This free program provides a variety of free directories, a library of self-help guides, downloadable apps including the GuideME for AMD, access to clinical trial research, and recent news highlighting AMD research and lifestyle articles.
“New research and treatment options are promising for geographic atrophy,” said Mr. Todd. “We encourage patients to work closely with their eye doctors to lessen the damaging effects of GA and preserve their vision for the future.”